just a little sister

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Different approaches

Have you ever had one of those moments when you’ve got a thumping headache, you’re due to pick the kids up from school and you’re just dreading the level of noise? I got the kids from school and, as predicted, there was a regurgitation of ‘mummy’, ‘mummy’, ‘excuse me, mummy’. Yes, well done darling, you…
She just needs time

This is something which resonates so loudly with parents of children with ASN and particularly those of us with children with Down’s Syndrome or a learning disability. Trudy needs a thyroid test every year to make sure that her thyroid function is what it should be. Underactive and overactive thyroids are treatable, but they need…
Having equity conversations

Have you ever been in a situation where a child screams at you in their most fervent voice, ‘but they got 15 minutes of TV, and I only got 5!’ or ‘they’ve had 2 biscuits and I’ve only had 1’. How did you handle it? Did you realise that they were right and that, being…
My shoulders are beginning to lower

My shoulders are beginning to lower because I’m not watching Trudy every minute of the day, wondering whether I’d shut the bathroom door properly so she doesn’t get to the lotions and potions in there or if she really was going to stay in the garden. I remember going to the World Down Syndrome congress…
We are more normal than we thought…

Over the years of having a child with a disability, I have come to understand that we are not, as first thought, the only unusual family out there. I regularly cross paths with people who state quite openly that one or both of their children or friend’s children have additional needs. Mostly because ‘we have…
Why we have written our book, ‘Trudy And Me’

I am going to try to capture in this blog what our daily social media posts are trying to say about why we have written our book, ‘Trudy And Me’. There is currently a crowdfunding campaign to fund the printing of this book which has 9 days left. I want to describe the process to…