What it actually means to be an almost 4 year old with a learning disability

“She’s got a developmental age of a 2 year old” is a common misconception of what it is to be an almost 4 year old with a learning disability.

It is so easy to see our children at an age which explains their delay in language or physical development. Trudy’s language is delayed and she probably has a word-bank that equates to that of an average 2 year old. But, have you ever met an average 2 year old? I certainly haven’t.

This was highlighted to us when we observed her playing with her cousin (who is 2). She might have the language of a 2 year old (in fact, she had far fewer words than him), but she has been on this Earth for almost 4 years. That means that she doesn’t have the tantrums of a 2 year old nor does she have their attention span. She can wait her turn and understand a queue. She can spend a long time at a table colouring in or having lunch because she has experienced these for almost twice as long.

This is something the outside world forgets but, for those of us working in the weird and wonderful world of additional support needs. We recognise that a 16 year old cannot be treated like a 2 year old despite their apparent disability. It is what we refer to as a ‘spiky profile’. Where language might be delayed, a child might learn to walk or climb or jump because, at that time, jumping is the most important thing to learn. I work in a school for young people with complex needs and predominantly with teenagers. Many of them are non-verbal and have developmental needs but this doesn’t mean that it is appropriate to watch Peppa Pig or Cocomelon unless this is something which they enjoy.

All children are motivated by what they desire to learn, and that is no different for children with a learning disability. They might just need more time to focus on each skill. Trudy has just been yelling at ‘Alexa’ to get her to play ‘Row, row, row your boat’. I am in no doubt that she will learn to say ‘Alexa’ very soon.

In special schools particularly, we are moving away from making assumptions about what level a child might be working at. With greater research in this area, we understand that it is no longer appropriate to say that a child is less able than another without considering all areas of their development. One child might be illiterate but have a huge capacity for storytelling. Again, what we learn from children with additional support needs can help us understand the differences and quirks in all children.

Some good research suggestions are below:

Dewey, J. (1916) Democracy and Education. New York: Macmillan.

Florian, L., Black-Hawkins, K. and Rouse, M. (2nd ed) (2014) Achievement and Inclusion in Schools. London: Routledge.

Hart, S. (2004) Learning Without Limits. Oxford: Oxford University Press

Universal Design for Learning

Responses

  1. Heather Normand avatar

    Trudy is so fortunate to have you two as parents – your quest for understanding and learning how to let her develop at her own pace is so valuable. A great article to read.

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    1. trudyscrumptious15 avatar

      Thank you Heather. I love reading feedback and I know you’ve been an avid follower of Trudy’s journey. Thank you for your support.

      Like

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